One of the reasons I started this blog was to write about life as a parent of a child with Down syndrome. It’s funny though. I realized today that very little of my writing here has to do with Down syndrome or with Davey’s having Down syndrome, or of our experience of him having Down syndrome.

Odd?

I do want to write more about it. Certainly it affects me, our family, and certainly it’s something I think about. At the same time, it’s not paramount in our lives. This is the difference five years can make. Down syndrome, and the fact of one of our family members having it, bears much less importance than many other things going on in our lives.

I’ve read a couple of blogs by parents (ok, moms) of infants and toddlers with Down syndrome. I recognize myself in their postings - their worries, their joys. And I want to let them know that the FACT - the big stark fact of Down syndrome - will fade, to be replaced by the pure being of their child.

Here I stand, five and a half years along this journey of life as Davey’s mom, and I look back at how far I’ve climbed. What I see is not so much the rocky path I’ve scrambled to ascend, but rather the clear sky and soaring vista. It’s not all rainbows and fluffy pink unicorns from here on out - heartaches and tough moments await us all, Down syndrome or not - but we are truly ok.